about the collaborative

Created in 2011, the DIPG Collaborative is an association of foundations unified with the mission of efficiently funding and inspiring diffuse instrinsic pontine glioma cancer research in the hopes of finding a wider cure for cancer. As part of an initiative of the DIPG.org Symposium meeting in March 2011, over 13 foundations met with researchers and cancer experts from around the world in the hopes of raising dedicated funds allowing for long-term protocols and registry data.

In 2012, a steering committee was appointed to carry out the operations of the DIPG Collaborative, led by the principal organizers of the original symposium. We welcome foundations from all backgrounds to participate in these initiatives and to become long term partners in the collaborative. To date, nearly $500,000 has been raised in the funding of innovative, dedicated DIPG research.

DIPG Collaborative Steering Committee

  • Dr. Trent Hummel, Cincinnati Children’s Hospital Medical Center
  • Jonathan Agin, Chapter Director – The Cure Starts Now Foundation, Washington D.C.
  • Keith Desserich, Chairman – The Cure Starts Now Foundation International
  • Tim Hayden, Founder – The Jeffrey Thomas Hayden Foundation
To learn more about DIPG and participate in the DIPG Collaborative sponsored registry, click here.

upcoming meetings

The DIPG Collaborative Symposium, originally held in Cincinnati in 2011, features cancer experts from around the world in collaboration with families and foundations supporting their work. Attended by over 15 foundations and 25 institutions from 7 countries, the DIPG Collaborative Symposium quickly became a dynamic cooperative exploring revolutionary DIPG research, clinical protocols and universal applications of DIPG research in the search for a cure for all forms of cancer.

The next DIPG Symposium will be held in Cincinnati, OH, May 2-4, 2013. For details and scheduling click here.

the foundations

The International DIPG Registry is fully funded by grants and in-kind support from the following organizations. If you are a foundation interested in participating in the collaborative, please email us.

Foundational Leadership Partner

The Cure Starts Now Foundation   Jeffery Thomas Hayden Foundation   Soar with Grace   The Lyla Nsouli Foundation
Reflections of Grace Foundation   Hope For Caroline   The Cure Starts Now Foundation: Australia    

Foundational Partner

Smiles for Sophie Forever   Benny's World   The Team Julian Foundation    

Symposium Sponsor

Max Lacewell   The Love Chloe Foundation   Caroline's Miracle Foundation   The Pray Hope Believe Foundation
National Brain Tumor Society   American Childhood Cancer Organization   Ellie DIPG Research Fund    

contact the collaborative

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